Mornings are my favorite part of my day right now. I have
always been a morning person, jumping out of bed, ready for the adventure of a
new day. I always loved the idea that a day could hold so many secrets. Now, I
still love the mornings but for a different reason. I love that time when I am
just starting to wake up, when all the possibilities of the day are there
before me. I cuddle with my pillow and blankets and think about walking to Coco
Beach, maybe going for a swim in the warm ocean. I think about sitting by the
water at Slipway with my laptop pr a book and passing the hours of the day. I
think that I will finally get the haircut I need and then meet a friend for
lunch.
Then I open my eyes and look around, trying to make sense of
where I am as my vision brings me back to my reality. I sit up in bed, pushing
myself up from the left side before flopping like a rag doll on my right side.
It takes me time to find my balance. I stay trapped on the bed while my by
figures out what it needs to do to function. One I can sit up straight, I put
my feet on the ground and talk myself into standing. Maybe it will be ok, maybe
I will fall against the wall in front of me, maybe I will stand as the room
begins to turn around me. I get a short wave of motion sickness that passes
through, but I ignore it. My head spins and my body feels beyond intoxicated as
I try to get dressed, putting one leg at a time slowly into mu shorts or jeans.
I prefer shorts at the moment. The feeling of jeans against my numb leg is
sometimes just too much. It is the same when taking a shower, I can’t take
water against both my legs at the same time, the difference in sensation freaks
me out. I have to rinse and wash my hair the same way, otherwise it is just too
much. The feeling of the water, the difference in temperature and the tingling
that happens on my left side are overwhelming.
The bulk of my day is spent on the sofa withmy legs elevated
to help the circulation. After breakfast, which consists of four medications
and some toast with butter, jam, cheese, Nutella and a cup of tea, I head back
to the sofa for an hour or two. Amd then all the thinking starts and it plays
tricks on my mind. They range from asking the “why me?” questions to
accusations that I maybe deserved it. I take inventory about how far I have
come. It is exactly thee weeks later, and while many people would still be in
the hospital, I am home and I am making some progress. And then the other
voices come and tell me I haven’t done much at all. They tell me I will always
be like this, that my life as I knew it is over. I try to block it out but with
little to distract me, it is near impossible. Sp I put on my leg weights and
focus on counting as I go through the motions of drawing numbers in the air
with my feet, doing leg extensions and other movements that are to make my legs
stronger. Some days, like today, I am not in the mood, but I will do it anyway
and I know that I will feel better afterwards. It is just getting over that
first hurdle. It reminds me of cartoons when someone is abound to go off a
cliff or take a long fall and someone else says “look out for that first step,
it’s a doozey!” Yes, the first step is always a doozey, but so far, each time,
I make it.
It is super easy to get into a “poor me” situation, and
believe me, I am tempted so many times a day. I have noone to make me get off
the sofa. Nobody is keeping track of how many exercises I do. Nobody is around
to make sure I even get out of bed, but for some reason I do. I spend a lot of
time thinking about people I have seen in India, Nepal and here in villages of
Tanzania and Kenya. I have seen people missing limbs, missing sight, crawling
from car to car begging for the smallest change. I have seen people sleeping on
road dividers, in the dirt under overpasses and in the city garbage dumps. I
have seen people with horrifically mutilated bodies, people whose families and
communities have tossed them aside and thrown away. Many of them are children,
and their life at the moment is as good as it will ever be. It will only get
worse. And then I look at myself and my life and all the wonderful people I
know and the things I have access to. I realize that while yes, strokes suck,
in the whole scheme of things, I have it pretty good. Sometimes a bit of
perspective is really important.
Stay focused on your recovery Robb, I know you can do it! You've got so many friends around the world, all cheering you on! xoxo Julie
ReplyDeleteRobb, you are now and always have been an inspiration to everyone around you. I could sit here and say keep it up and all that inspirational stuff, but I know that sometimes that only makes it worse, cause you think, " who are you to talk, you son't know what I am going through" and you would be right, I don't. What I do know is that I love you and I am here for you if you need an ear to bend. I am very proud of you for what you have already accomplished and I love you. So, without sounding too Hallmark cardish, keep it up, you'll get back to where you want to be.
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